TY  - BOOK
AU  - Kaan,Terry
AU  - Ho,W.Calvin
TI  - Genetic Privacy: an Evaluation of the Ethical and Legal Landscape 
SN  - 9781783263066
AV  - RB155.5 
U1  - 174.2/96042 23
PY  - 2013///
CY  - London
PB  - Imperial College Press
KW  - Human genetics
KW  - Moral and ethical aspects
KW  - Bioethics
KW  - Diagnostic services
KW  - Genetics
KW  - Technique
KW  - Confidential communications
KW  - Civil rights
KW  - Humanities
KW  - Diagnosis
KW  - National health services
KW  - Social psychology
KW  - Human rights
KW  - Social control
KW  - Medical care
KW  - Sociology
KW  - Social sciences
KW  - Genetic screening
KW  - Morals
KW  - Diagnostic Services
KW  - Genetic Techniques
KW  - Confidentiality
KW  - Genetic Services
KW  - Diagnostic Techniques and Procedures
KW  - Civil Rights
KW  - Preventive Health Services
KW  - Patient Rights
KW  - Investigative Techniques
KW  - Health Services
KW  - Psychology, Social
KW  - Behavior and Behavior Mechanisms
KW  - Community Health Services
KW  - Human Rights
KW  - Analytical, Diagnostic and Therapeutic Techniques and Equipment
KW  - Social Control, Formal
KW  - Health Care Facilities, Manpower, and Services
KW  - Psychiatry and Psychology
KW  - Health Care Economics and Organizations
KW  - Delivery of Health Care
KW  - Social Sciences
KW  - Anthropology, Education, Sociology and Social Phenomena
KW  - Genetic Privacy
KW  - ethics
KW  - Privacy
KW  - Bioethical Issues
KW  - Jurisprudence
KW  - Genetic Testing
KW  - Ethics
KW  - legislation & jurisprudence
KW  - Génétique humaine
KW  - Aspect moral
KW  - Services de diagnostics
KW  - Génétique
KW  - Secret professionnel
KW  - Diagnostics
KW  - Méthodologie
KW  - Droits de l'homme
KW  - Sciences humaines
KW  - Services de santé
KW  - Psychologie sociale
KW  - Droits de l'homme (Droit international)
KW  - Contrôle social
KW  - Prestation de soins
KW  - Sociologie
KW  - Sciences sociales
KW  - Bioéthique
KW  - Dépistage génétique
KW  - civil rights
KW  - aat
KW  - humanities
KW  - diagnosis
KW  - social psychology
KW  - sociology
KW  - social sciences
KW  - MEDICAL
KW  - bisacsh
KW  - fast
KW  - Electronic books
N1  - Includes bibliographical references and index; The notion of genetic privacy / Calvin W.L. Ho and Terry S.H. Kaan -- Can data protection secure personal privacy? / Onora O'Neill -- Navigating the privacy complex of self, other, and relationality / Calvin W.L. Ho -- Privacy and biomedical research : a role-based approach / Anh Tuan Nuyen -- Socio-political discourses on genetic privacy in Japan / Kenji Matsui -- Genetic privacy : a challenge to genetic testing in China / Chunshui Wang -- Don't ask, don't tell : exploring the limits of genetic privacy in Singapore / Terry S.H. Kaan -- Privacy, rights, and biomedical data collections / Benjamin Capps -- Individual right vs. public interest : the role of the Islamic religious council of Singapore in bioethics consultation on genetic privacy / Nazirudin M. Nasir -- What -- if anything -- is special about "genetic privacy"? / Jacqueline J.L. Chin and Alastair V. Campbell -- Genetic privacy in the United States : genetic exceptionalism, GINA, and the future of genetic testing / Thomas H. Murray and Ross S. White -- The regulatory framework for protection of genetic privacy in Australia / Margaret Otlowski and Dianne Nicol -- Privacy matters in nicotine addiction / Yvette van der Eijk -- Human genomics and privacy / Oi Lian Kon
N2  - Privacy is an unwieldy concept that has eluded an essentialised definition despite its centrality and importance in the body of bioethics. The compilation presented in this volume represents continuing discussions on the theme of privacy in the context of genetic information. It is intended to present a wide range of expert opinion in which the notion of privacy is examined from many perspectives, in different contexts and imperatives, and in different societies, with the hope of advancing an understanding of privacy through the examination and critique of some of its evolving component concepts such as notions of what constitute the personal, the context of privacy, the significance and impact of the relational interests of others who may share the same genetic inheritance, and mechanisms for the protection of privacy (as well as of their limitations), among others. More specifically, the discussions in this volume encourages us to think broadly about privacy, as encompassing values that are entailed in the sociality of context and of relations, and also as freedom from illegitimate and excessive surveillance. A long-standing question that continues to challenge us is whether genetic information should be regarded as exceptional, as it is often perceived. A conclusion that could be derived from this volume is that while genetic information may be significant, it is not exceptionally so. The work presented in this volume underlines the continuing and growing relevance of notions of privacy to genomic science, and the need to take ownership of a genetic privacy for the future through broad, rigorous and open discussion. Contributors: Alastair V. Campbell, Benjamin Capps, Jacqueline J.L. Chin, Oi Lian Kon, Kenji Matsui, Thomas H. Murray, Nazirudin Mohd Nasir, Dianne Nicol, Anh Tuan Nuyen, Onora O'Neill, Margaret Otlowski, Yvette van der Eijk, Chunshui Wang, Ross S. White
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